He had suffered\u00a0more than six years with\u00a0Huntington’s disease, which Erin describes as Alzheimer’s, schizophrenia and Parkinson’s “all wrapped up in a package.”\u00a0<\/p>\n
“He started talking about the last Easter, the last birthday, the last Christmas, because he believed he would qualify and that would get him out of the trap his body and mind had become,” she said in a telephone interview from her home in Innerkip, a village in southwestern Ontario.<\/p>\n
Watching political process unfold<\/h2>\n
Her husband anxiously watched the political process unfold, pleased with\u00a0the special parliamentary committee that recommended broad parameters for doctor-assisted death along with strict safeguards to protect the vulnerable.<\/p>\n
But by the May long weekend last year, Schreurs came to realize he would\u00a0likely be excluded by the government’s new legislation, which ultimately required\u00a0a “reasonably foreseeable” death.<\/p>\n
![\"John](\"http:\/\/usa.timesofnews.com\/wp-content\/plugins\/RSSPoster_PRO\/cache\/7edb9_john-schreurs3.jpg\")
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John Schreurs, right, wanted a ‘dignified death’ after suffering from Huntington’s disease. This photo was taken on a trip to Ottawa with his wife Erin and daughter Caitlin in 2013. (Courtesy Erin Schreurs)<\/p>\n
With attempts to starve himself and overdose on pills unsuccessful, his plan turned to travelling to\u00a0Switzerland.<\/p>\n
He died on Sept. 8, 2016, with the assistance of Dignitas, a Swiss non-profit organization that helps people with chronic or terminal illnesses end their lives.<\/p>\n
\n\nToday, a group of politicians and advocates, including NDP MP Murray Rankin, held a news conference on Parliament Hill asking the Liberals to fix a “flawed” and overly restrictive law that causes prolonged patient suffering or forces Canadians to die abroad.<\/p>\n
Calls to fix law<\/h2>\n
“I’m sad to say it’s clear now that the problems identified by experts both in the medical and legal fields are now the reality for many suffering Canadians,” said Rankin, a former law professor who served on the special committee that advised the government on medical aid in dying.<\/p>\n
Canada’s new law, which\u00a0came into effect on June 17, 2016, limits assisted death to mentally competent adults who have serious and incurable illness, disease or disability where death is imminent.<\/p>\n
It excluded some of the most contentious recommendations from a parliamentary committee that studied the issue, including extending the right to die to “mature minors” and the mentally ill, and allowing advance consent for patients with degenerative disorders.<\/p>\n
Josh Paterson, executive director of the British Columbia Civil Liberties Association, said at the news conference too many Canadians are disqualified.<\/p>\n
NDP says government’s assisted-dying legislation is failing Canadians<\/strong>1:11<\/p>\n “People have been cut out of their constitutional right because of the requirement that a person’s death be reasonably foreseeable,” he said.<\/p>\n Logistical challenges forced Schreurs into “task mode,” making all the required\u00a0arrangements from travel schedules to medical appointments for her husband and foreign money transfers. All in, the costs were about $30,000 for her, their son and daughter to accompany him to Switzerland so he could die.<\/p>\n She doesn’t want others to go through the same experience. She believes those who passed the law put political interests ahead of patient care.\u00a0<\/p>\n “They already know what the courts recommended, they’ve already had the special committee. What gives them the right to not follow those recommendations? Why do they think they know better?” she asked.<\/p>\n Current legislation came after a unanimous landmark\u00a0ruling on Feb. 6, 2015, by\u00a0the Supreme Court of Canada, which found the\u00a0ban on physician-assisted death violated Canadians’ charter rights.<\/p>\n The case involved two B.C. women who wanted end their lives with\u00a0medical help. Both\u00a0died\u00a0before the court ruled.<\/p>\n Gloria Taylor, who had a\u00a0neurodegenerative\u00a0disease, eventually died of an infection. Kay Carter, then 89, travelled to Switzerland.\u00a0<\/p>\n Independent reviews of three issues identified in Bill C-14 as requiring further study is now underway,\u00a0with a report due\u00a0by December 2018.\u00a0<\/p>\nPolitical interests trump patient care<\/h2>\n
Legal appeal underway<\/h2>\n