An 18-year-old UBC student living with Duchenne muscular dystrophy is the first person in Canada to drive using a state-of-the-art electronic Swiss driving system that allows people with minimal hand function to control a vehicle with a single joystick.
“For a while there before the disability actually came to be a little more, I started thinking maybe I won’t be able to drive,” said Shaan Lail.
Lail uses a wheelchair because the disorder causes his muscles to become weaker as he ages.
“I grew up around cars … so my dream has always been to drive, so when this system came along, I started having a little more hope.”
While there are other adaptive driving technologies out there, Lail’s instructor, Dean Robertson, says the Joysteer system has fewer limitations.
“The Joysteer system is unique in that it allows you to change the amount of force with the hand control and that means you can accommodate a wider array of clients, as well, you can do technical upgrades over the internet.”
According to Spinal Cord Injury B.C., unless your disability was related to an ICBC or Worksafe claim, vehicle adaptations are not covered by provincial programs.
“Most people resort to crowdfunding to pay for van conversions,” said B.C. SCI manager Jocelyn Maffin.
“Conversions or new vehicles can start at $40,000. Used adapted vans can cost $15,000 or more.”
Because driving isn’t considered medically necessary, the Lail family is paying out of pocket to buy Shaan a vehicle with the Joysteer system — at a cost of over $70,000.
“There are a lot of people who are disabled that don’t have as many opportunities, so it would be great if the government covered a significant amount of the price,” said Shaan Lail.
“Because in all honesty, everyone wants to drive. Any other friend I have in a power wheelchair — their dream is to just drive, to be independent because to them, driving would be everything.”
Shaan’s mother Vee said the experience of driving has been life changing for her son.
“It makes him independent,” she said.
“Basically for his life, for working, attending university — he wants the same social life as every other boy does — he wants to date. He wants to go out with his friends.”
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Article source: http://www.cbc.ca/news/canada/british-columbia/18-year-old-ubc-student-with-disability-first-in-canada-to-use-swiss-driving-system-1.3789317?cmp=rss